What can I do to get all of my Doctors to communicate with one another?
I see a neurologist, a counselor, a psychiatrist, and a general practitoner all for a seizure disorder among other things. I have asked that they communicate with one another because they each know different things about the disorder and maybe even me. I thought by doing communicating with eachother they might be able to figure out what was going on to cause my seizures and in turn be able to offer me better treatment. But thus far I haven’t been able to convince them to communicate with eachother.
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That’s so strange. I’ve been having like… almost exactly the same issue.
I’m eager to see what anyone has to offer.
But thus far, I’ve been doing the work. I make them write out letters and give numbers and then every time I go to the other doctor, I present them with my material. It’s the only way to sort of communicate that I can figure out.
Best of luck.
Yea, it seems the patients have to do all the work to make sure that the doctors understand what is going on and to remain safe.
I really appreciate your attention on this matter. My grandmother almost died because she was seeing three doctors who where all prescribing her medicines which mixed badly. So make sure you have lists of all the medications you take and tell the other doctors. Be persistent. Although they might be annoyed they’ll be more annoyed with you dead or in the hospital.
Part of the problem is that each of those specialists has
a unique approach to the problem. Since they don’t use the same
concepts, then talking to each other, may not produce the results that
you think it might. I’m not saying this to discourage you but
it’s a practical thing. Unfortunately an awful lot falls on the shoulders
of the patient to try and sort this out. You may have to communicate
little bits of one persons view to the other over a period of time.
Until eventually you’ll get results.”rico” ’s advice about medication
is a good one. Write them down and show every doctor the total list.
Akhale51 wrote:
Yea, it seems the patients have to do all the work to make sure that the doctors understand what is going on and to remain safe.
its a shame when dr’s do their jobs for the money rather than caring for the patients..
An Undisclosed Location | 10 months, 1 week ago (3 hours, 32 minutes after post)
It’s a job industry, they all want your money. They don’t want to share it. It is sad and true. I’m not sure what more you can do then to just keep trying. Sorry you are having to go through this. I wish you the best of luck.
hockeymaniac500 wrote:
It’s a job industry, they all want your money. They don’t want to share it. It is sad and true. I’m not sure what more you can do then to just keep trying. Sorry you are having to go through this. I wish you the best of luck.
Thats a blanket statement which is quite unfair. Doctors get money that they deserve because of the incredible hard work they go to in there education. We don’t think twice to give a baseball player millions of dollars, we praise Will Smith when he gets 25million for some movie but we are angry when a doctor gets 120K for 8years of being a poor college student working 80hrs a week. Its a hard job and I seriously doubt you could do it so lets cut some slack. We all have to take responsibility for our own health so if you see several doctors inform them of what the other doctors are doing and take care of yourself.
I mever said that I was angry at them? I just said it was an industry. The industry just happens to be quite competitive. They all want your business, just lik ferrari would rather have you buy from them than from subaru. I never meant tosound disrespectful about any of it.
I have been in a similar situation. A couple of things seem to help:
1. It’s best if as many doctors as possible are associated with the same hospital (or chain of hospitals) they can look up records of your visits on shared systems and the doctors seem to know each other better.
2. Make sure all of the doctors send reports to your general practitioner. Every time you see the doctor, ask that they fax or e-mail any new information and changes to your physician.
3. Try to go to the same pharmacy all the time. Get to know the pharmacists, they are well-educated, and a real resource when it comes to possible medicine interactions. They also have a “hotline” in to the doctor’s offices - they can get through sooner and get things accomplished as you wait if necessary.
However, as you have realized, you are your own best friend and advocate when it comes to your health. Ask questions, take notes, and keep copies of your documentation to share between doctors.
Best wishes, stay well!
Thanks, everyone for your advice and insight. I do keep a list of my medications and allergies on me at all times and use the same pharmacy. But a recent example of miscommunication or better put no communication is my psychiatrist recently diagnosed me with ADHD and put me on Adderall. When I relayed this information to my counselor she expressed concern that it would interact with my seizure meds as did my neurologist. My primary care doctor expressed concern that it may increase my seizure activity. Which brings me to Spiratec’s comment, I understand what you are saying. However, how is the patient suppose to know what information to share with their doctors? I mean I told my counselor that I had been recently diagnosed with ADHD and she completely diasgrees with the diagnosis. Which makes what you are saying make sense. But there is no way I could have predicted her response. Do you have any advice in a situation like that?
counselor has no place with a diagnosis. A psychiatrist spends years learning the brain chemistry that causes mental disorders and they are the only people qualified to make that statement. If you are concerned with your diagnosis seek a second opinion from another psychiatrist.
OK, I think I will probably just talk to my General practitioner, who has known me for 20 years, about it and get his advice. He will probably be able to give me an accurate diagnosis. But this is not the only example of my doctors not communicating with one another. I have been in the hospital and one doctor knew and didn’t tell the other doctor what was going on. Which I think is important considering that for whatever reason I was in the hospital may help the other doctor treat me more appropriately.
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