I think I have lupus.
This is long and im sorry but i need to explain. For the past 3 or more years i’ve been having really bad joint pain. I’ve always bruised easily and I have a genetic bone disease that causes my bones to be weak. People with this disease usually get arthritis at an early age. So I assumed it was early arthritis…. But then this year something changed. I wasnt just getting a little bit of pain in my wrists anymore… it started spreading.. starting with my back.. my lower back.. my hips…now, recently it has moved to my neck and shoulders and knees and ankles. this started about this time last year… I couldnt get out of bed one day. The pain in my hips started the day before and it was so bad that i used to have to lean on things while standing or get out of bed really slow in the morning. I thought it was an injury… or lack of exercise.. but it kept going and going.. a few weeks i’d be able to hop out of bed and shake my hips like shakira but then some days i couldnt get out of bed for the life of me… The pain is almost paralysing.. not because its that painfull (it is pretty painful) but because if i move to sit up i get this really annoying pain in my hip joints and im so stiff that its really hard to even sit up on my own… Then I started to get sick.. I got a UTI as in a urinary tract infection. It “came and went” or so i thought… because one day I started throwing up… then i started losing weight.. every time i got a cut it would get infected.. and i mean really infected.. once i cut my leg really bad from a fall and it got infected so bad that i had cellulitis.. . they had me on the strongest anti-biotics….. i also bruise so easily.. the other day, just to prove it to a friend.. i poked myself in the arm and we watched together as it bruised before our eyes.. i dindt even poke that hard. about a month ago my bladder infection that had apparently been going on for a year got so bad that i had to go to the hospital.. i was vomiting blood and my white blood cell count was 30,000. WTF??? they gave me pure penicillin and painkillers because my kidneys felt like someone had just ripped them out and replaced them with bricks. They said my kidney function was a little off and they werent shure why but it may have been because i have been taking so much ibuprophen to take away my join pain. So they told me to stop taking those kind of painkillers and prescribed me with vicodin 5 mg and said to take tylenol when i run out… I started thinking i might have lupus when i went on web md to check my symptoms and it came up with rheumatoid arthritis, lupus, lumbar spinal stenosis, diabetes, and some thyroid disorder. I’ve since then had my thyroid checked and my doctor says that its fine… I did find out that my spine is compressing…(lumbar spinal stenosis) and I also found out that my blood sugar is perfect and i dont have diabetes…. so all that is left is lupus and arthritis….. but i also found out today that people who have arthritis are more likely to get lupus…. and lupus fits right in with my terrible immune system and joint pains. It also fits with the fact that whatever is wrong with me seems to go through stages or recession… some weeks im perfectly healthy some weeks im sick as a dog.. almost like the flu…I’m extremely fatigued and tired… I sleep entire days away and wake up still tired and in pain.. some days i actually lie in bed all day because i cant do anything else. So what am i supposed to do now? Honestly, I dont have the money for this… I can barely get my anti-anxiety pills… I have good insurance but when it costs 10-20 dollars per visit to the doctor its just way too much.. I dont even have food in my fridge or gas in my car… wait.. i dont have a car.
Since writing this post NotoriousKYA may have helped people, but has not within the last 4 days. NotoriousKYA is a verified member, has been around for 5 years, 2 months and has 52 posts and 631 replies to their name.
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