Year help: I am a mother of a young adult male who has narcolepsy. - Help.com



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I am a mother of a young adult male who has narcolepsy.

He’s had it for almost 20 years. From what I know he has taken everything under the sun doctors have to treat narcolepsy with. These drugs are having little effect, if any, on him anymore so he is taking them in higher doses. I know this means addiction and over-dosing . I want to know what others are “safely” taking and how they are coping with this aweful problem.

This open post was written 3 months ago | V/U/S: 71, 5, 4 | Edit Post | Leave a reply | Report Post

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sun, addiction, narcolepsy, Year, safety, drug, Adult, young, male, mother, drug addiction, drug depenency (How Tags Affect Reciprocity)

Replies (5)

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LoSasso offline Verified User (3 months) Long Term User Shouts: 0 #
An Undisclosed Location | 3 months ago (7 minutes after post)

I live in Masschusetts.

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Shie offline Verified User (1 year) Long Term User Shouts: 199 #
Gloversville, NY, US | 3 months ago (16 minutes after post)

try checking out this site.. i am not aware of anything to do with this .. however.. im sure there are contacting information in which you could actually email them and get some answers.. goodluck.. (also.. if you type www.google.com and then type in the type of issue you are looking for.. it will bring up a lot of information for you.. goodluck.

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Mas1st online Verified User (6 months, 3 weeks) Help.com Volunteer Moderator Long Term User Shouts: 411 #
An Unknown Location | 3 months ago (4 hours, 18 minutes after post)

Wow you are in luck in some ways there are loads of groups and treatment centres in your area - dont know if you’ve seen these - Mas

http://www.google.com/search?sourceid…

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gimli offline Verified User (2 years) Long Term User Shouts: 7 #
Marietta, GA, US | 3 months ago (11 hours, 26 minutes after post)

I have a friend who suffers from narcolepsy, and tried lots of different medications until recently, when she discovered one that actually worked for her. Don’t give up!

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sleepingbeauty192 offline Verified User (2 months, 2 weeks) Shouts: 1 #
An Unknown Location | 2 months, 2 weeks ago (3 weeks after post)

I have narcolepsy with cataplexy quite severely. I am on provigil, lexapro, impram and xyrem. If he has cataplexy severly I would definetly suggest xyrem although it is a very serious drug. None of the drugs used to treat any of the symptoms are fun..and they tend to work against eachother. It took me over 2 years to finally get stabalized on a combination of meds I can function on. However, everyday is different and we narcoleptics have our good days and bad. Would you mind telling me more about his case? Plus how old is he? I’m only 20, and I know it is VERY theraputic to be able to talk to someone who understands. But everyone is different and thats also the case with narcolepsy. You have to keep trying new things…somethings might not start working right away either. But there is hope..believe me i know been there and done that.

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