Love help: Due to my disease, I have lost another job.

melkni

Due to my disease, I have lost another job.

This is bad for two reasons. First, now I have no income. Secondly, I was about a week away from having health insurance there. I was diagnosed with my disease about 7 years ago and have suffered from it my entire adult life. I don’t want you to think that I’m complaining. I’m not at all. Living a life like mine is still better than the alternative, but sometimes I wish that I didn’t have the constant pain, or could get out of bed on my bad days and do the dishes. My main problem right now is this: I have no income, no health insurance and need badly to go to the doctor. I cannot find any resources for low-income adults to receive health care if they do not have children. It isn’t that I wouldn’t like to have children. I would love to have kids, but how can I be expected to take care of a child, when I can’t take care of myself? Filing for disability isn’t an option because you have to be actively seeking treatment, which I can’t afford. I can’t get MedicAid because at my age, you have to have SS declare you disabled. I am at my wits end with this. Each day, I get more and more sick and if I can’t get better, I can’t get a new job. Does anyone have a suggestion?

This open post was written 1 year ago | V/U/S: 191, 37, 8 | Edit Post | Leave a reply | Report Post

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Since writing this post melkni may have helped people, but has not within the last 4 days. melkni is a verified member, has been around for 1 year and has 2 posts and 13 replies to their name.

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Insurance, Pain and nociception, Love, life, disability, Week, Health insurance, disease, Expected value, Year (How Tags Affect Reciprocity)

Replies (37)

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littlenick 149 #
An Undisclosed Location | 1 year ago (24 minutes after post)

What’s wrong with you?

littlenick invited 36 users to read this post 1 year ago.

Commander Ikari 234 #
An Undisclosed Location | 1 year ago (27 minutes after post)

Have you a family?

Help me with: I Heard It Through The Grapevine

evansent 2008 1 #
An Undisclosed Location | 1 year ago (35 minutes after post)

what disease have you got ?

melkni 0 #
An Unknown Location | 1 year ago (1 hour, 22 minutes after post)

It’s called Interstitial Cystitis, more commonly known as Painful Bladder Syndrome. I was diagnosed at 19. Yes, I do have a family.

Commander Ikari 234 #
An Undisclosed Location | 1 year ago (1 hour, 23 minutes after post)

Can they offer support?

Help me with: I Heard It Through The Grapevine

steff 134 #
An Unknown Location | 1 year ago (2 hours, 3 minutes after post)

you were fired because of your disease? that’s discrimination

Help me with: I think we all need a laugh.

evansent 2008 1 #
An Undisclosed Location | 1 year ago (2 hours, 7 minutes after post)

melkni wrote:
It’s called Interstitial Cystitis, more commonly known as Painful Bladder Syndrome. I was diagnosed at 19. Yes, I do have a family.

omg you poor thing,what can you do to alleviate that?

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 4 minutes after post)

My family has paid my rent and a few other bills since I lost my job. Technically, I wasn’t fired because of my disease. I was fired because I missed work, which was missed due to my disease. There isn’t anything I can do to fight it, really. I wish there was something I could do, but at this point, there isn’t. That’s kinda why I’m here. hehe Hoping someone has a suggestion on what I could do to get help.

evansent 2008 1 #
An Undisclosed Location | 1 year ago (3 hours, 7 minutes after post)

ok have you tried carbonate of soda in a glass of water
this helps with the burning

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 12 minutes after post)

Yes, I have. But burning isn’t the problem at this point in time. It’s the pain. It’s been so bad the past few days that vicodin doesn’t even help. I’m at a loss for what to do.

evansent 2008 1 #
An Undisclosed Location | 1 year ago (3 hours, 15 minutes after post)

im really tired now but ill speak to you on monday
in the meantime,you try to have a restful sleep :)

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 18 minutes after post)

Thank you. That’s the goal. :) I’ll talk to you soon.

littlenick 149 #
An Undisclosed Location | 1 year ago (3 hours, 19 minutes after post)

Have you tried explaining to your employer about your illness?

littlenick invited 20 users to read this post 1 year ago.

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 21 minutes after post)

I tried contacting my supervisor and explaining, but she didn’t respond. That was really frustrating.

☆miss lilies☆ 272 #
An Undisclosed Location | 1 year ago (3 hours, 23 minutes after post)

Hi there, i really have no idea on how things work where you are, i am a world apart from you. But here is to wishing you well and i hope things are going to be easier for you in the coming days.

I’m really sorry i cannot help though. *lilies hides.

Help me with: My friend’s mom died.

littlenick 149 #
An Undisclosed Location | 1 year ago (3 hours, 24 minutes after post)

Hey lilies where are you going? Get back here from behind that dresser! *littlenick goes looking for lilies*

closed 53 #
An Undisclosed Location | 1 year ago (3 hours, 25 minutes after post)

I hope some of these sites help you.

http://www.missouripain.org/

http://www.ichelp.org/PatientInformat…

http://www.ic-network.com/forum/showt…

http://www.southeastmissourihospital….

http://www.incontinet.com/webcompass-…

These are sites for clinical trials in your area for treatment of IC.
Sometimes clinical trials pay the patients.

http://clinicaltrials.gov/ct2/results…

http://www.ic-network.com/clinicaltri…

Patient drug assistance:

http://www.ic-network.com/drugassista…

littlenick 149 #
An Undisclosed Location | 1 year ago (3 hours, 25 minutes after post)

You may want to bring some medical records. The way the economy is going right now they may be having hard times but I am sure they can still keep you on! Try it!

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 35 minutes after post)

Thanks Cailean! Most of the sites, I already knew about. The clinical trials, I was already aware of as well. I actually have the paperwork on one of them already. :) We cover a lot of things like that in my support group. The last meeting was all about the $57 million that the NIH has allotted for IC research and the studies that are going on because of that. The ones near me that have to do with that have not started yet, though.

beatricegalant 29 #
An Unknown Location | 1 year ago (3 hours, 36 minutes after post)

OK, I had similar problems when I had kidney stones. What I had to do is to avoid citrus fruits, tomatoes, coffee, alcohol, chocolate and I hope you don’t smoke either. In my case simple aspirin and Tylenol made the difference, sometimes I had to take antihistamine.

closed 53 #
An Undisclosed Location | 1 year ago (3 hours, 36 minutes after post)

What about social assistance from the state?
Surely you must qualify for some?
Can you talk to legal aid and see if they can help you?

beatricegalant 29 #
An Unknown Location | 1 year ago (3 hours, 44 minutes after post)

It’s about time people in the US should get proper basic health care. It is ridiculous to hear cases like this and peoples’ lives are put on hold because of greedy money mongers. Anon’s case is so easy to treat and with proper care she would be symptom free within 2 to 4 months.

melkni 0 #
An Unknown Location | 1 year ago (3 hours, 49 minutes after post)

I agree. A lot of people in the US are completely against a socialistic health care system. They seem to be all about free market. In free market, there is no regulation, and people like me are left with nothing to do, but sit and wait for something to happen. If I could get some healthcare, I might be able to find a treatment that does help.

Barbyman 6 #
An Unknown Location | 1 year ago (5 hours, 49 minutes after post)

i like to know what Superpower the USA realy is ? Atom bombs around 400. Rockets to kill 20 000 at one time. Cluster bombs so nothing will grow the next 100 years 5000. Approximately to kill the Whole World 25 times over and not “ONE HEALTH SYSTEM” to cover an ordinary American Citizen.SHAME ON YOU …….BUSH-BUSH SR- AND THE OTHER ,I HAVE NEVER EVER TOUCHED TAHT GIRL -AND THE REST OF THE SUPERPOWER PRESIDENTS.Well i guess greed is good shows you were you can finish up. I think the Romans were there before you all you had to do look back in to history…

Help me with: Just recently i came back from Japan after staying a Week.On one occasion we stayed in the Red Light District in Tokyo.Something

Commander Ikari 234 #
An Undisclosed Location | 1 year ago (5 hours, 52 minutes after post)

Do you mean Clinton?

Help me with: I Heard It Through The Grapevine

Barbyman 6 #
An Unknown Location | 1 year ago (5 hours, 53 minutes after post)

was there another i should know of???

Help me with: Just recently i came back from Japan after staying a Week.On one occasion we stayed in the Red Light District in Tokyo.Something

Commander Ikari 234 #
An Undisclosed Location | 1 year ago (5 hours, 54 minutes after post)

slimline2 wrote:
was there another i should know of???

another president?

We’ve had over 40…

Help me with: I Heard It Through The Grapevine

Barbyman 6 #
An Unknown Location | 1 year ago (5 hours, 56 minutes after post)

was there another President who actually said something similar?

Help me with: Just recently i came back from Japan after staying a Week.On one occasion we stayed in the Red Light District in Tokyo.Something

havefaith #
An Undisclosed Location | 1 year ago (6 hours, 41 minutes after post)

Maybe something like this can help you with your condition:

http://pathtofaith.com/videos

This account has been deactivated.

Anonymous #
1 year ago (9 hours, 16 minutes after post)

If your condition is that bad could you go on some kind of disability?

melkni 0 #
An Unknown Location | 1 year ago (11 hours, 2 minutes after post)

I have looked into disability, but in order to be approved, I have to be actively seeking treatment. Because I haven’t had insurance for more than 2 years, I haven’t been able to go to the doctor during that time frame. I’ve put in an application, but I’m unsure as to whether or not it will be approved. We’ll see, I guess.

beatricegalant 29 #
An Unknown Location | 1 year ago (15 hours, 24 minutes after post)

Write a letter to your political representative, or better yet, to Obama. He will understand.

melkni 0 #
An Unknown Location | 1 year ago (23 hours, 38 minutes after post)

That’s a really good idea. Thank you Beatrice!

beatricegalant 29 #
An Unknown Location | 1 year ago (1 day after post)

Let me know what happened. Good luck!

I left 491 #
An Undisclosed Location | 1 year ago (1 week, 6 days after post)

I hope the case for disability works out. The US does seem to have a talent for the stereotypical catch 22 situation sometimes. :(

Help me with: I know I have been gone and I am not myself lately.

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