Pink Freud invited 36 users to read this post 1 year, 1 month ago.
im sorry Puck. i really hope that this turns out good for you. I cant imagine having to deal with a condition like that where you are in constant pain and cant hardly eat anything and then on top of all that have to deal with this crap. Wish there was something i could do to help :(( Did the doctor even tell you why he thought that about you?
MorganLOVESyou wrote:
im sorry Puck. i really hope that this turns out good for you. I cant imagine having to deal with a condition like that where you are in constant pain and cant hardly eat anything and then on top of all that have to deal with this crap. Wish there was something i could do to help :(( Did the doctor even tell you why he thought that about you?
No one knows. I think it’s because he’s a neurotic little man.
wow. i agree with what you’re doing and why. but as for the new doctor: whats so wrong about talking to him and explaining your reason for asking for more pill’s previously so he wont continue to have this predisposed opinion of you? im sure he could understand if you explained your situation. i mean at least try :)
Dude, that sucks man! I hope he loses his License! He has no right to do this to you this is just frustrating!!! I have to go kick some puppies now, because of him! I’m still praying for you, Puck, and I can only hope that this whole mess gets cleared up soon!
tbear55 wrote:
wow. i agree with what you’re doing and why. but as for the new doctor: whats so wrong about talking to him and explaining your reason for asking for more pill’s previously so he wont continue to have this predisposed opinion of you? im sure he could understand if you explained your situation. i mean at least try :)
I have a feeling that subject would be better left untouched with this guy as he has pretty much already made his mind up about me. I am having my mom go with me though as she is already a patient there and will step in if he does or says anything offensive.
:) you should be happy to have such a good mother. with her help you can get through this.
tbear55 wrote:
:) you should be happy to have such a good mother. with her help you can get through this.
Trust me, I am.
MorganLOVESyou wrote:
im sorry Puck. i really hope that this turns out good for you. I cant imagine having to deal with a condition like that where you are in constant pain and cant hardly eat anything and then on top of all that have to deal with this crap. Wish there was something i could do to help :(( Did the doctor even tell you why he thought that about you?
Btw, I appreciate that and the invites.
Just curious but how often did/do you refill your medication?
Dr. Jackson wrote:
Just curious but how often did/do you refill your medication?
Once a month and never before it was scheduled to be refilled and many times later than it was due.
I see your justifiable anger and the nature of your reasoning. Yes you have been stigmatised. But you need help from a gastroenterologist you now have access to one and your best move is to take him at face value. You say that you’ve never asked for pain meds so the condition set on you, while annoying and insulting, won’t matter where it counts, your treatment.
Tymbus wrote:
I see your justifiable anger and the nature of your reasoning. Yes you have been stigmatised. But you need help from a gastroenterologist you now have access to one and your best move is to take him at face value. You say that you’ve never asked for pain meds so the condition set on you, while annoying and insulting, won’t matter where it counts, your treatment.
I am taking him at face value. He has judged me as a drgu-seeking junkie dope-dealer and has only agreed to take me on b/c two well-respected doctors were nagging him to take me on as a patient. If I didn’t have those two doctors nagging him I wouldn’t even have a GE and I’d still be left hanging.
You also need to be careful that you don’t creat a self fulfilling prophecy where by your sense that the Doctor-Patient relationship won’t be good leads to you inadvertantly acting in a defensive way that could be interpreted as hostile and then create the relationship that you fear. Of course, sadly the Doctor foarmed with biased information may also do this. So don’t be provoked.
Tymbus wrote:
You also need to be careful that you don’t creat a self fulfilling prophecy where by your sense that the Doctor-Patient relationship won’t be good leads to you inadvertantly acting in a defensive way that could be interpreted as hostile and then create the relationship that you fear. Of course, sadly the Doctor foarmed with biased information may also do this. So don’t be provoked.
Yea, you’re right. Thanks for the advice.
Doctors usually write on their prescriptions how many times you can ask for refill. It was your doctor who said you need 3 or 4 or more refills. When that expired, did you ask for more refill or it was within the refill time he said you are a drug junky?
beatricegalant wrote:
Doctors usually write on their prescriptions how many times you can ask for refill. It was your doctor who said you need 3 or 4 or more refills. When that expired, did you ask for more refill or it was within the refill time he said you are a drug junky?
With narcotics you have to go in to get refills and he said he would continue refilling until the date of surgery and I asked him 4 days prior to surgery and he flipped out. However, I was due for a refill and I was going on what he had said in the past. So he gave me 20 and then sent a letter of discharge to me via registered mail the next day. Sent a note b******* a/b me to my GP that very day. I stuck to the regimen we had agreed upon he’s just a very neurotic and deluded man.
So he needs more the narcotics and maybe he was jealous you will get it….just joking. It is very sad when a doctor is this low class idiot.
beatricegalant wrote:
So he needs more the narcotics and maybe he was jealous you will get it….just joking. It is very sad when a doctor is this low class idiot.
lol. Yea
With narcotics you have to go in to get refills and he said he would continue refilling until the date of surgery and I asked him 4 days prior to surgery and he flipped out. However, I was due for a refill and I was going on what he had said in the past. So he gave me 20 and then sent a letter of discharge to me via registered mail the next day. Sent a note b******* a/b me to my GP that very day. I stuck to the regimen we had agreed upon he’s just a very neurotic and deluded man.
Interesting. Why did he flip out? It sounds a bit like like he had made an error not monitoring your narcotics use properly and discharged you before questions about his professional practice could be asked
Tymbus wrote:
With narcotics you have to go in to get refills and he said he would continue refilling until the date of surgery and I asked him 4 days prior to surgery and he flipped out. However, I was due for a refill and I was going on what he had said in the past. So he gave me 20 and then sent a letter of discharge to me via registered mail the next day. Sent a note b******* a/b me to my GP that very day. I stuck to the regimen we had agreed upon he’s just a very neurotic and deluded man.
Interesting. Why did he flip out? It sounds a bit like like he had made an error not monitoring your narcotics use properly and discharged you before questions about his professional practice could be asked
That’s the thing, no one knows what made him snap. The whole time he was prescribing to me he kept saying “we know (my name here) doesn’t have any problems with drug-seeking behavior” “we don’t have to worry about (put name here)” “(name) is my favorite patient”, “It’s just not fair that she has to got through so much at such a young age.” But then I go in for my refill 4 days before surgery and he starts yelling at me saying that he has a litany of reasons not to prescribe to me and that he said he wasn’t going to prescribe to me and that he’ll give me 20 and that’s his “final offer take it or leave it.” I left not even knowing what had just happened.
I am going to hazard a guess it actually had nothing to do with you. Some thing got him rattled. Prhaps some other case. OR when he realised that he could (I am guessing) have killed you while you had surgery on pain killer (eg anisthetic effects etc) he realised his own slack handling of you could have landed him in deep water
I must say I also find bit weird the way professionals talk to you and about you. They are like none I have met
Tymbus wrote:
I am going to hazard a guess it actually had nothing to do with you. Some thing got him rattled. Prhaps some other case. OR when he realised that he could (I am guessing) have killed you while you had surgery on pain killer (eg anisthetic effects etc) he realised his own slack handling of you could have landed him in deep water
Yea, more than likely.
Tymbus wrote:
I must say I also find bit weird the way professionals talk to you and about you. They are like none I have met
Yea, we thought it was odd too. We had a feeling that it was more self-talk than anything else.
Daft- thanks for the invite.
I can certainly understand why you have mixed emotions about this new doctor-patient relationship. You have been slandered and even though his lie isn’t true, he left you to deal with the repercussions. Keep your head up and give the new doctor time to realize the #ssh#l# doctor was wrong. The new doctor may be prejudice in the beginning but he will soon enough have his own experience with you that should triumph jerk doctor’s comments.
Z-Anonymous wrote:
Daft- thanks for the invite.
I can certainly understand why you have mixed emotions about this new doctor-patient relationship. You have been slandered and even though his lie isn’t true, he left you to deal with the repercussions. Keep your head up and give the new doctor time to realize the #ssh#l# doctor was wrong. The new doctor may be prejudice in the beginning but he will soon enough have his own experience with you that should triumph jerk doctor’s comments.
Yea, I only hope he gives me the chance. I mean sure he accepted me as a patient but just how much chance is he going to give me before he has decided he has officially made his mind up a/b me. I’m fed up with this high school bs! You’d think you could expect better from the medical community.
They are probably inbred.
Doubletime wrote:
They are probably inbred.
lol. Sadly, that wouldn’t surprise me.
Anonymous
#
1 year, 1 month ago (11 hours, 19 minutes after post)
I have been to two j**k doctors. I think this might give a new line of thinking to your problem
http://patients.about.com/od/doctorsa…
Although , I have fear of approaching doctors also…. lol because they can be mean and they know your secrets..
Anonymous
#
1 year, 1 month ago (11 hours, 24 minutes after post)
The link btw says that you can’t fight a doctor as its not worhy of your time and efforts and mostly futile, so you need to implement tricks to lure him into giving you right treatment. It has some other basic related links which might be helpful. I personally feel your situation is very frustrating type.
I’m sorry to hear of the situation. My hope is that your new doctor will come to know that you are not after drugs, but healing; and he will provide you with the necessities for that.
Anonymous
#
1 year, 1 month ago (13 hours, 12 minutes after post)
Dear Puck
I haven’t read all the responses just your post and here are my 2 cents. You have a new doctor, great news. Enjoy it. I know your emotions are drained after the ongoing nonsense with the last one, but remember new doctor equals new start. The other doctor, lets call him the idiot for ease of reference, has written nonsense about you. All of it is untrue. You know, the idiot knows it, we know it. In time the new doctor will know it.
All you have to do is be yourself which will cause the new doctor to realise that the idiot is indeed an idiot. Stop all this, there is no hope of a good doctor patient relationship. There is every hope because you now have a doctor as a doctor not an idiot. Get it?
The idiot will be revealed as what he is in time. You have a doctor in your own town, no more taking long bus rides to see a doctor, celebrate. It is a victory.
Don’t let the idiot mar your potentially excellent relationship with your new doctor. In time, he will trust you. (Can’t you feel you’re winning?)
Anonymous wrote:
I have been to two j**k doctors. I think this might give a new line of thinking to your problem
http://patients.about.com/od/doctorsa…
Although , I have fear of approaching doctors also…. lol because they can be mean and they know your secrets..
Wow! That article reads like it was written about my former GE.
Anon wrote:
Dear Puck
I haven’t read all the responses just your post and here are my 2 cents. You have a new doctor, great news. Enjoy it. I know your emotions are drained after the ongoing nonsense with the last one, but remember new doctor equals new start. The other doctor, lets call him the idiot for ease of reference, has written nonsense about you. All of it is untrue. You know, the idiot knows it, we know it. In time the new doctor will know it.
All you have to do is be yourself which will cause the new doctor to realise that the idiot is indeed an idiot. Stop all this, there is no hope of a good doctor patient relationship. There is every hope because you now have a doctor as a doctor not an idiot. Get it?
The idiot will be revealed as what he is in time. You have a doctor in your own town, no more taking long bus rides to see a doctor, celebrate. It is a victory.
Don’t let the idiot mar your potentially excellent relationship with your new doctor. In time, he will trust you. (Can’t you feel you’re winning?)
Yea, you’re right. But I’m really having a hard time seeing it that way right now.
Your new doc is stuck in the middle for now. He has no choice but to pay attention to the words of your previous doc. The old doc has flagged you as a drug abuser and that can’t be ignored (even if not true!).
Please don’t hold it against the new doc. Just as he shouldn’t be deciding anything about you without really knowing you and giving you a chance, you shouldn’t assume anything negative about him. He only wants to do his job! AND, you want him to do his job! So, you are really starting out on the same page, eh?
Over time, you will get to know each other. He can form his own assessment of the ‘flagging’ after you become his patient. He will be able to do his own evaluation of the situation AND UPDATE your medical records to show that he doesn’t agree with the previous doc! That’s worth a lot!
It’s not terrible that you can’t ASK for pain meds (narcotics). It doesn’t mean you can’t let them know when you are in pain and to what degree. When they know your pain level reaches a particular stage, they have the obligation to do something about it. Pain management is a part of treatment.
I say give the guy a chance and let him give you a chance too! He’ll find out for himself. ;) He has the power to turn your medical records around along with the perception of you that the old doc is spreading. Help him to do that, okay?
I only see GOOD news! :)
This new doctor dosen’t know you. As you stated, he only has what the former Dr. writ about you. So, take advantage about that. Put aside how you feel about the way he has treated you and mum. Make ONE reservation to yourself that you will go in not feeling anything negative.
And then gather your thoughts, and give him the condensed Reader’s Digest version of what happened with the other Dr. Provide the other side of the story to him.
Be honest and frank and then wait and see how your upcomming appointments with him go.
Anonymous
#
1 year, 1 month ago (16 hours, 32 minutes after post)
Daft Puck wrote:
Anon wrote:
Dear Puck
I haven’t read all the responses just your post and here are my 2 cents. You have a new doctor, great news. Enjoy it. I know your emotions are drained after the ongoing nonsense with the last one, but remember new doctor equals new start. The other doctor, lets call him the idiot for ease of reference, has written nonsense about you. All of it is untrue. You know, the idiot knows it, we know it. In time the new doctor will know it.
All you have to do is be yourself which will cause the new doctor to realise that the idiot is indeed an idiot. Stop all this, there is no hope of a good doctor patient relationship. There is every hope because you now have a doctor as a doctor not an idiot. Get it?
The idiot will be revealed as what he is in time. You have a doctor in your own town, no more taking long bus rides to see a doctor, celebrate. It is a victory.
Don’t let the idiot mar your potentially excellent relationship with your new doctor. In time, he will trust you. (Can’t you feel you’re winning?)
Yea, you’re right. But I’m really having a hard time seeing it that way right now.
That what idiots are great at doing, i.e. confusing you so that you see things upsidedown/back to front etc. If this new doc doesn’t think there is anything wrong with you AFTER he has been with you for longer time, the idiot doesn’t stand a chance.
Sorry to hear that.
I know what its like waiting and trying to find the right doctor.
Know that you are right in what you are doing. That fighting for the right things seems silly to have to do, but dont give up or in to someones misuse of authority.
I agree with Kitten, this is great news that you go into a clinic that will help.
You are a strong chicky Puck, I know your pride and feelings may have been hurt by someone prejudging you but know that you can rise above that all.
Sounds like you’re starting to get results, Puck, even if the going is slow. I get why you’re concerned about your new GE, but try to stay positive about it, and hopefully he’ll realise your former doctor’s opinion of you was wrong. And as for your former doctor, I agree with what others have said: it sounds like what happened was nothing to do with you, and maybe him getting into trouble for something.
This reply has been removed.
Hey puck, geez that doc seems like an *** to do that to you…tho i know what its like..my second-in-line GP did the same to me just as i was going into hospital and wrote lies bout me on my letter..which of course had a knock on effect..luckily i have a good consultant who knows me well..anyways….rambling!1…would it be possible to find a doc in another country in the EU?? I know we always go to your country…and ye usually have the best docs there!!but is could be worth a shot if u were able to do it!?Id go to this new doc anyways just to see what they say..and as Kitten_Ciao says. they could change your record…just make sure you tell them everything and including what meds you are on and how many times you refill the meds and when you refill the meds…..explain everything…when they ask you what your pain level is…even if it is a 10 or an 11 out of 10…always say 9 or 9.5…they dont believe you could ever feel a 10 or more….once again from experience! but the fact that u have a new doc is good news!!! and having the support from your mum is good too!! :D good luck with it and let us know how you get on!!! :) xx
Wyyldfairy wrote:
Hey puck, geez that doc seems like an *** to do that to you…tho i know what its like..my second-in-line GP did the same to me just as i was going into hospital and wrote lies bout me on my letter..which of course had a knock on effect..luckily i have a good consultant who knows me well..anyways….rambling!1…would it be possible to find a doc in another country in the EU?? I know we always go to your country…and ye usually have the best docs there!!but is could be worth a shot if u were able to do it!?Id go to this new doc anyways just to see what they say..and as Kitten_Ciao says. they could change your record…just make sure you tell them everything and including what meds you are on and how many times you refill the meds and when you refill the meds…..explain everything…when they ask you what your pain level is…even if it is a 10 or an 11 out of 10…always say 9 or 9.5…they dont believe you could ever feel a 10 or more….once again from experience! but the fact that u have a new doc is good news!!! and having the support from your mum is good too!! :D good luck with it and let us know how you get on!!! :) xx
Unfortunately, I have no way of leaving the country. I am lucky that I am able to make it to Seattle to see the specialists I have there. Anyway, I appreciate the advice. I have written a letter which states all the facts and I plan on handing him the letter when I see him. Hopefully, that’ll make the visit less stressful and clear up any concerns he may have a/b me. Again, thank you.
Daft Puck wrote:
I have written a letter which states all the facts and I plan on handing him the letter when I see him. Hopefully, that’ll make the visit less stressful and clear up any concerns he may have a/b me. Again, thank you.
ooh thats a good idea…at least you’ll remember everything you need to say to him…i always tend to forget things and when i leave theres always something else i was meant to say!!
Good luck with the visit!!! x
It’s unfair, the damage rumors and false accusations can have on the normal, ordinary everyday life of anyone. It saddens me to hear how your previous Dr. branded you, especially since I’ve known you for quite awhile.
We used to talk on a regular basis, and at that time I can honestly say, I never once in any conversation, saw you as a druggie or someone hyped up on painkillers. You were always very lucid, well informed, and talkative. The exact opposite of someone abusing drugs.
Hang in there and view it as a way to clear your reputation with the new Dr. I’m sure you’ll do fine..
‘b’
~~_/)_~~ wrote:
It’s unfair, the damage rumors and false accusations can have on the normal, ordinary everyday life of anyone. It saddens me to hear how your previous Dr. branded you, especially since I’ve known you for quite awhile.
We used to talk on a regular basis, and at that time I can honestly say, I never once in any conversation, saw you as a druggie or someone hyped up on painkillers. You were always very lucid, well informed, and talkative. The exact opposite of someone abusing drugs.
Hang in there and view it as a way to clear your reputation with the new Dr. I’m sure you’ll do fine..
‘b’
Thanks, b. I appreciate the encouraging words, they mean a lot to me. :)
Wyyldfairy wrote:
Daft Puck wrote:
I have written a letter which states all the facts and I plan on handing him the letter when I see him. Hopefully, that’ll make the visit less stressful and clear up any concerns he may have a/b me. Again, thank you.
ooh thats a good idea…at least you’ll remember everything you need to say to him…i always tend to forget things and when i leave theres always something else i was meant to say!!
Good luck with the visit!!! x
Thanks. I initially did it to vent my frustrations and then decided to do it to state the facts and what I wanted to say to him.
Puck.. there is a lot of opposition to removal of the gall bladder, some even say it contributes to the problems you’re dealing with.. ML has been looking into this and found some very insightful info on it.
~~_/)_~~ wrote:
Puck.. there is a lot of opposition to removal of the gall bladder, some even say it contributes to the problems you’re dealing with.. ML has been looking into this and found some very insightful info on it.
I’d really be interested in seeing some of it if she’s ever up to shouting me.
Here is a link to a page you might find interesting: http://www.medhelp.org/posts/Gastroen…
Read the comments from everyone that replied. I have suspicions concerning the real cause of these problems a lot of people are dealing with in the past few years. I’ve told you about my lactose and gluten intolerances before. Doctors don’t seem to believe the effect, they both can have on different people, depending on what their individual weak spots are. It can go from IBD to nausea and GERD. I’m really starting to think that it might also cause the gastroparesis problem in some people. I found another website with more possible confirmation of this: http://www.adventuresofaglutenfreemom…
Read Heidi’s response. It appears A LOT of people are gluten-intolerant and the thing doctors are not willing to admit is that the tests they use on patients to determine if someone is gluten intolerant or not, are NOT accurate, A LOT of the time!
If you ever do consider going on a gluten free diet, you have to remember, it takes up to 2 months of being gluten-free before all symptoms disappear from your body and also, that gluten is found in many food additives, so you have to read labels carefully and know exactly what you’re looking for. This means that you would need to find some gluten free website where you can find all the necessary information and study it carefully….
Anyway, Puck, if you ever consider this in the future, you can shout me and I’ll help you with whatever you need to know about it. Gluten-intolerance is what brought me to HELP.com, years ago. I am healthier now than I used to be when I was in my twenties because of not having gluten (and lactose too!) in my diet. My family doctor ran test after test over a long period of time to figure out what was wrong with me back then. They were never conclusive. I found my own solution searching the web, applied what I had found to myself, regardless of what the doctors were willing to agree with, and I am doing very well because of it.
The Internet actually saved my life and apparently, it has done the same for a lot of other people. What is quite obvious to me now is that you really can’t really solely on the medical community to keep yourself healthy. Unfortunately, many doctors like to keep their patients dependent on them and the pills and drugs they prescribe.
I hope you find the solution you are looking for… real soon. Hugsss…
:)
ML
*rely* solely… (Oops! Typo.)
This reply has been removed.
Thanks for the info.
Since the diagnosis of my gastroparesis I was hospitalized for close to 3 weeks with pancreatitis and then was diagnosed with sphincter of oddi dysfunction by way of a very risk procedure known as an ERCP w/ manometry. The doctor who performed the procedure said that I had a very elevated basal pressure and that was likely a contributing factor to my pain, nausea, and probably even caused the pancreatitis. I felt great for 6 weeks. I then went to see him for check-up and he said I would likely need pain management for the rest of my life as I am in the small percentage of patients who do not receive relief from the ERCP. This doctor suspects my gastroparesis was caused by the flu but I suppose gluten could be a contributing factor. But tbh, the flu makes more sense b/c when I was two I went into a coma after having the flu.
okei! wrote:
i hope you will be well soon you won’t be needing any dammn doctors at all
Thanks! That would be best of all.
This reply has been removed.
Hi, just briefly reading all the on-going posts:
Please keep in mind the ones, like mine, that you must treat this new Doctor as a fresh start. You must, despite the wrong done to you, play the good patient. Focus on the condition and his plans for help.
I STRONGLY advise you not to raise past conflicts. This DOctor is treating you in good faith even after having been informed (however wrongly) that you are a drug absuer. He is extending good faith and professional courtesy to you and has agreed to see you. The last thing you need to do is embroil him in conflict.
My strong advice is when you see him thank him for taking your case on, outline your symptoms, medical history and ask for help and a treatment programme.
I strongly do not recommend using your meeting to detail past conflict either in a letter or verbally.
Tymbus wrote:
Hi, just briefly reading all the on-going posts:
Please keep in mind the ones, like mine, that you must treat this new Doctor as a fresh start. You must, despite the wrong done to you, play the good patient. Focus on the condition and his plans for help.
I STRONGLY advise you not to raise past conflicts. This DOctor is treating you in good faith even after having been informed (however wrongly) that you are a drug absuer. He is extending good faith and professional courtesy to you and has agreed to see you. The last thing you need to do is embroil him in conflict.
My strong advice is when you see him thank him for taking your case on, outline your symptoms, medical history and ask for help and a treatment programme.
I strongly do not recommend using your meeting to detail past conflict either in a letter or verbally.
My letter has nothing to do with my other doctor. It has to do with my medical history, etc. And what do you mean by a treatment program? To me that sounds like rehab, which I don’t need.
a treatment programme is just an outline of treatment that you will take…not a rehab thingy at all…i dont think anyways!!
See how defensive you are? I meant simply a plan of treatment for your condition over time. When have I ever a) suggested that you were an addict or b) suggested you needed rehab. I believe your account of your problems.
I’m sorry DaftPunlk but if you are that sensitive and that confrontational your new relationship with your new Doctor ain’t going to work. Thanks for the clarification on the letter. Take care, (that’s not a threat take care means look after yourself and I wish you well.)
Tymbus be nice!!!….when you have been treated horribly by docs you do tend to get a bit sensitive about what others think!! ive been there and its not nice when they dont believe you!it takes a good doc and friends and family to help you through it…and sometimes even when u know people believe you and understand you ..you can still feel like they dont some days!
Anonymous
#
1 year, 1 month ago (1 day, 9 hours after post)
Wyyldfairy wrote:
Tymbus be nice!!!….when you have been treated horribly by docs you do tend to get a bit sensitive about what others think!! ive been there and its not nice when they dont believe you!it takes a good doc and friends and family to help you through it…and sometimes even when u know people believe you and understand you ..you can still feel like they dont some days!
We’re all going through traumas and it really hurts when you are trying to help someone, like Tymbus is and you get snapped at. Happens all too often on help.com. Nothing beats face to face or telephone communnication.
Hey, I’m not being nasty to DaftPunk. i am desperately worried that the tension apparent in certain posts will transmit itself to this doctor and DaftPunk will end up in the same situation of conflict.
I am not going to tell you the conflict I’ve been in for twenty years, but I know that at key points I’ve had to act as if everything is a fresh start, even though it hasn’t been.
So Wyyldfairy when you write: sometimes even when u know people believe you and understand you ..you can still feel like they dont some days! THAT is my concern.
If one of those days is in the Doctor’s practice- DaftPUNK may wave good bye to the help needed and deserved.
That is true alright Tymbus! I hear what your saying! hmmms…i suppose the best thing for daftpunk to do is maybe treat this visit as if there has never been any other doc and as if its the first time visiting with this problem?
and the the anon after me…wasnt snappin at Tymbus ..is very hard to include tone of voice when your typing!!
Wyyldfairy wrote:
That is true alright Tymbus! I hear what your saying! hmmms…i suppose the best thing for daftpunk to do is maybe treat this visit as if there has never been any other doc and as if its the first time visiting with this problem?
and the the anon after me…wasnt snappin at Tymbus ..is very hard to include tone of voice when your typing!!
No preoblems. Texting etc is a nightmare as we have no para-linguistic cues to go on.
and your idea of the best thing DaftPunk can do is the ame as my idea. Anyway you’ve posted a fairly imporrtant post on adoption. So get back to that and tell me what you thought of my advice! :)
i think im going to include tone of voice instructions with my future replies…is safer!
Btw, the name is “DaftPuck” Like a hockey puck. Common mistake but still thought you should know. :)
sorry DaftPuck…wasnt watching what i typed!! forgive me??>…
Wyyldfairy wrote:
sorry DaftPuck…wasnt watching what i typed!! forgive me??>…
lol. Of course.
Hey A…., If you read the info that ML sent you in links, I’m sure there is a solution to what you’re going through in something that’s written there. What she shared with you is the truth, it literally saved her life! She was so allergic to everything she was eating that she could not sleep, not enjoy a meal, not enjoy life, not function in everyday life without pain and discomfort. And lo and behold all of the medical community said “here take this pill, it will fix your symptoms”… BUT…It did not fix the problem!! She did them one better by curing herself with only a change in diet. Sadly her Doctors did not beleive her when she detailed to them how she had managed her own cure, they still wanted to prescribe drugs for her to mask the symptoms…
I know you’re a very intelligent woman, and I also know that most people decide to listen to their Doctor because they assume that person is well versed and intelligent in determining what ails us. In some cases this is not the truth, sadly…
I suppose in followup I have only one question, why allow only them to treat your “condition?”
If this were me, I would be open to suggestions whether it be a change of diet, a change of Doctors, a change of latitude, or even a change of attitude, etc, etc..
Also… I’ve recently discovered that I can’t drink milk… plain old regular, everyday whole milk makes my gut hurt like helllll.. I can put half and half in my coffee with no probs, but milk makes me hurt terribly… I can’t explain that and so far no else has been able to either..
Take care..
‘b’
oooooooooooooooooh…….just something that ~~_/)_~~ said about diet and stuff…….now…this sounds really weird i know…and my GP even suggested this..tho he is kinda different to most docs and open to the “alternative” medicine group!…but anyways…i basically went to a gym…now this was a specialist gym…and the ppl who ran it were..oh tbh i have no idea what they were exactly…but they changed my diet…worked on specific muscles in the gym and on specific machines at seriously ungodly horrible weights…but…u know…it actually worked..i was so much better for ages…and then i got worse again but because of something else….these guys got a girl who was due for a hip replacement out running and walking…and she doesnt need it anymore…sure i was due for a knee replacement..at 22…and dont need it now…anyways…the part about the changing the diet…even that could help maybe…if u saw a dietician or something like that…have u looked at the alternative homeopathic medicine area? and this part sounds strange too…even an osteopath could help too!
Wyyldfairy wrote:
oooooooooooooooooh…….just something that ~~_/)_~~ said about diet and stuff…….now…this sounds really weird i know…and my GP even suggested this..tho he is kinda different to most docs and open to the “alternative” medicine group!…but anyways…i basically went to a gym…now this was a specialist gym…and the ppl who ran it were..oh tbh i have no idea what they were exactly…but they changed my diet…worked on specific muscles in the gym and on specific machines at seriously ungodly horrible weights…but…u know…it actually worked..i was so much better for ages…and then i got worse again but because of something else….these guys got a girl who was due for a hip replacement out running and walking…and she doesnt need it anymore…sure i was due for a knee replacement..at 22…and dont need it now…anyways…the part about the changing the diet…even that could help maybe…if u saw a dietician or something like that…have u looked at the alternative homeopathic medicine area? and this part sounds strange too…even an osteopath could help too!
I’ve spoken to a dietitian and they don’t know how to deal with my digestive illnesses as they are very complex. I’ve altered my diet dramatically b/c I had to and I still suffer on a daily basis. I have been told by a specialist in Sphincter of Oddi dyfunction (not just a specialist, but the world-renowned specialist in SOD) that I would likely need pain-management for the rest of my life to cope with the symptoms of SOD. This same doctor is very anti-narcotic as it slows down the digestive tract and I also have gastroparesis. However, he said in my case it was necessary and even called my GP and asked if he would take on the task of prescribing and over-seeing the pain management component of my treatment.
Sorry…
God bless you and good luck…
‘b’
~~_/)_~~ wrote:
Sorry…
God bless you and good luck…
‘b’
No reason to apologize. I appreciate your trying to help. I really do.
Oh dear god…you poor thing….right..the last thing you need right now is pity..so im not pitying you..i hate pity!…anyways..rambling once again…can i ask what pain meds ur on?…tell me go away if ud rather not!….hmm…let me think again so!
Anonymous
#
1 year, 1 month ago (1 day, 15 hours after post)
Doctors, specialists, consultants, surgeons oftentimes get it wrong. I have been misdiagnosed SEVEN times and was correctly diagnosed (accidentally) by an oestopath which of course had to be confirmed by doctors, specialists, consultants and surgeons.
I was told that my condition was permanent when it has has now been cured by surgery.
It’s amazing how much we value them and how much they value themselves. They are always so adamant they are right and when proved wrong, they just dismiss it and blame US for not stating this when they should have asked us that. They make the mistakes, not us.
Always keep an open mind when it comes to your health care and listen to everyone. You’ll be suprised what a certain supplement or alternative theraphy can do. Use the traditional doctors as the backbone and look around. Good luck.
Anonymous wrote:
Doctors, specialists, consultants, surgeons oftentimes get it wrong. I have been misdiagnosed SEVEN times and was correctly diagnosed (accidentally) by an oestopath which of course had to be confirmed by doctors, specialists, consultants and surgeons.
I was told that my condition was permanent when it has has now been cured by surgery.
It’s amazing how much we value them and how much they value themselves. They are always so adamant they are right and when proved wrong, they just dismiss it and blame US for not stating this when they should have asked us that. They make the mistakes, not us.
Always keep an open mind when it comes to your health care and listen to everyone. You’ll be suprised what a certain supplement or alternative theraphy can do. Use the traditional doctors as the backbone and look around. Good luck.
I am very open-minded, I may not seem like it on this post but I am. One of my first theories was lactose intolerance; my sister in-law has celiac disease, so I looked into that at one point. But I do not have either. It took 23 years for my doctors to find the right diagnosis so I know doctors get it wrong. I was on the wrong seizure med for 20 years before I had a new neurologist come in and discover the error and correct it. I know all about medical errors as I have been a patient for almost as long as I have been alive. You do not need to tell me about medical errors as I am well-versed in them. But I honestly believe that my diagnoses are correct and not mistakes.
Anonymous wrote:
It’s amazing how much we value them and how much they value themselves. They are always so adamant they are right and when proved wrong, they just dismiss it and blame US for not stating this when they should have asked us that. They make the mistakes, not us.
Always keep an open mind when it comes to your health care and listen to everyone. You’ll be suprised what a certain supplement or alternative theraphy can do. Use the traditional doctors as the backbone and look around. Good luck.
Anon you are soo right its scary….and it shouldnt be that way at all! but sadly it is1
Anonymous
#
1 year, 1 month ago (1 day, 16 hours after post)
Daft Puck wrote:
But I honestly believe that my diagnoses are correct and not mistakes.
So did I, when they told me I had a condition that was incurable and so do I, now when they tell me I am cured. I, like most people believe what they tell me at the time. They are rather convincing. Only time will tell….
Anonymous wrote:
Daft Puck wrote:
But I honestly believe that my diagnoses are correct and not mistakes.
So did I, when they told me I had a condition that was incurable and so do I, now when they tell me I am cured. I, like most people believe what they tell me at the time. They are rather convincing. Only time will tell….
Time has told. I have a gastric stimulator implanted and it has made a difference, it has made it so I can eat more than I was able to even two years ago, it has made it so I am not nearly as nauseated, and it has relieved much of my pain. However, due to the fact that I have also been diagnosed with SOD I still occasionally have some pain and there’s no doubt in my mind that this is a condition I have as there would be no other explanation for recurrent attacks of pancreatitis and a consistenly elevated lipase. Since the manometry, my lipase has dropped down into normal ranges and I have not had anymore bouts of pancreatitis. That to me, is a pretty good indicator of an accurate diagnosis.
Pink Freud invited 1 user to read this post 1 year, 1 month ago.
Wyyldfairy wrote:
What is SOD??
Sphincter of Oddi Dysfunction
oh god hun that sounds like a really horrible experience for you!! :(
Wyyldfairy wrote:
oh god hun that sounds like a really horrible experience for you!! :(
Thanks. It is. But I get by.
Wyyldfairy wrote:
Oh dear god…you poor thing….right..the last thing you need right now is pity..so im not pitying you..i hate pity!…anyways..rambling once again…can i ask what pain meds ur on?…tell me go away if ud rather not!….hmm…let me think again so!
I’m on dilaudid.
I dont really understand your sickness but i do know what its like to be constantly sick and how hard it is to stay in any way positive…so kudos to you for that!!
Daft Puck wrote:
I’m on dilaudid.
dont know that pain med at all! em the ones ive been on are arcoxia, Targin, lyrica(pregabolin is the generic name for it), oxynorm..cant remember the rest…loadsa morpine too :P but thats hosp use only….oh there is pallexia too but dont take if u are asthmatic! :P
Wyyldfairy wrote:
I dont really understand your sickness but i do know what its like to be constantly sick and how hard it is to stay in any way positive…so kudos to you for that!!
Daft Puck wrote:
I’m on dilaudid.
dont know that pain med at all! em the ones ive been on are arcoxia, Targin, lyrica(pregabolin is the generic name for it), oxynorm..cant remember the rest…loadsa morpine too :P but thats hosp use only….oh there is pallexia too but dont take if u are asthmatic! :P
Dilaudid is related to morphine.
ah i see…the morphine related meds always make me hallucinate!!
Pink Freud closed this post: Thanks for the input. I will take it into consideration upon meeting with my new doctor.
This post has been closed, no more replies. Thanks!
President Awesome:3
casie
red1263
Dr. Jackson
Tymbus
IrAdler
Z-Anonymous
Ahhotep
readcar
Kitten_Ciao
BIG AL ONE
cupcake7
TranquilTempest
Wyyldfairy
~_b_~
~❤♡❤~