Year help: My older brother (45 years old) has epilepsy and has medication to prevent seizures. - Help.com

Matt
offline Verified (3 years, 5 months) Visit Matt's shoutbox
US

My older brother (45 years old) has epilepsy and has medication to prevent seizures.

He goes through cycles of not taking medication (tegretol) for months has a grand mal seizure then gets on it again. He remembers nothing of course after these tremendous attacks and will even deny them for a while after having one. Can anyone give me some advise from experience?

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-Angel- offline Verified User (2 years, 9 months) Long Term User Shouts: 2 #
An Undisclosed Location | 2 years, 9 months ago (3 minutes after post)

Carbamazepine or Tegretol, has to be taken every day, why does he stop takeing them?????

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (4 minutes after post)

He is just in denial, I guess…he says he wants to be normal.\

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (4 minutes after post)

He has a sense of shame almost, after a seizure he will ask his wife if she still loves him etc…

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-Angel- offline Verified User (2 years, 9 months) Long Term User Shouts: 2 #
An Undisclosed Location | 2 years, 9 months ago (7 minutes after post)

If he carries on like this then he can do a lot of harm to himself. You must get him to se the doctor and get his doctor to put an end to this. Have a word with his wife, and get her on your side, this has to stop and stop now.

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (7 minutes after post)

I think he thinks it makes him less of a man. That combined with never really knowing the horrible (he just had one in his office about 3 hours ago) experience of the whole ordeal, he just chooses to deny and lie about taking medication…. Yes I just talked with her…his doctor said if he refuses to take the meds she will not see him…

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (10 minutes after post)

If he does not medicate, he would have one maybe twice a year. So I think that is a problem for him as well. He thinks “this time I am better”

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Oster: Gettin' It. offline Verified User (2 years, 10 months) Long Term User Shouts: 1 #
Atlanta, GA, US | 2 years, 9 months ago (19 minutes after post)

I think you’re right about your brother’s motives for coming off of meds. It’s possible he feels he is a man, or normal, emotionally, and the epilepsy and meds, to him, are denying that feeling.

I think, maybe, if he were able to separate himself from the disease, that might help his perspective — the epilepsy does not define him, it’s just a thing he has to take care of.

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (22 minutes after post)

another roadblock to his consistant medicating is that he does not remember a single thing about it after a seizure (I wish I could have recorded it now), so it is like someone telling you that you did something that you don’t remember and you need to take 3 pills forever because of it.

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.......... offline Verified User (2 years, 11 months) Long Term User Shouts: 1 #
An Undisclosed Location | 2 years, 9 months ago (25 minutes after post)

Sounds like he might want to see someone about a possibility of depression.

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (27 minutes after post)

Our family was wondering that…even though there are no signs whatsoever..besides denial. He is type A, a go getter, avid surfer, loves life, claims Christ as his savior…

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (29 minutes after post)

not totally surrendered to His Lordship though…

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.......... offline Verified User (2 years, 11 months) Long Term User Shouts: 1 #
An Undisclosed Location | 2 years, 9 months ago (29 minutes after post)

Christians can suffer from depression too. Sometimes as christian because we believe in being ggod witnesses we are afraid to admit that we could possibly be depressed

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (33 minutes after post)

You are right, but I don’t think that he is struggling to have a good witness, I think that there is a pride thing going on…

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.......... offline Verified User (2 years, 11 months) Long Term User Shouts: 1 #
An Undisclosed Location | 2 years, 9 months ago (42 minutes after post)

lol oh I see. Either way, I would concentrate on getting him help in that area. Sounds like he is being self distructive & one of the problems with people who are depressed is them having the will enough to take thier meds. Doctors know this.
Also people can often be very good at hiding thier depression.

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Oster: Gettin' It. offline Verified User (2 years, 10 months) Long Term User Shouts: 1 #
Atlanta, GA, US | 2 years, 9 months ago (46 minutes after post)

When it comes to denial, it usually takes something significant to break through. You’re very perceptive about your brother’s attitude, Matt, and I think you may be able to help him somewhat by talking about a different perspective — indirectly addressing his perception.

Maybe not even focusing on the epilepsy, and having a “no big deal” attitude about it; it’s just a thing, not a defining attribute of your brother’s worth.

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.......... offline Verified User (2 years, 11 months) Long Term User Shouts: 1 #
An Undisclosed Location | 2 years, 9 months ago (46 minutes after post)

With him being an adult it will be dificult. Tell him & you & the family are worried about him & ask if you can have permission to talk to the doctor for peac of mind.

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candp offline Verified User (3 years, 3 months) Help.com Volunteer Moderator Long Term User Shouts: 56 #
Las Vegas, NV, US | 2 years, 9 months ago (1 hour, 29 minutes after post)

Matt, your brother needs to understand that epilepsy is not something that comes and goes. He also needs to understand that is does not make him less of a person unless he chooses not to take his meds in a responsible manner. When he chooses to ignore truth and responsibility he not only jeopardizes his life, he jeopardizes any one in a car with him while driving and any other outside of his vehicle, either walking or driving in his vicinity. Is there alcohol abuse involved here? How long has he been an epileptic and what was the cause?

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wu jing offline Verified User (3 years, 1 month) Long Term User Shouts: 2 #
Yichang, 12, CN | 2 years, 9 months ago (13 hours, 31 minutes after post)

I think the most significant problem is that he can’t conface his physical disease correctly, maybe, it’s more the psychological promblem than epilepsy. so I suggest that you take you brother to see a psychologist, after that, so you don’t need to find help and this is not seem like a problem at all.

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (5 days, 20 hours after post)

Thank you for your time and thoughts about this difficult situation 3sons, oster, wu, candy and my friend derrick. One of the main problems is that there is usually no evidence (to him) of the whole ordeal, his memory is wiped clean. Also his family has been helping him to conceal some episodes because of his strong desire to not draw this type of attention to himself. My sister-in-law confided that he had a seizure only 3 months ago while he was driving with his wife and daughter in the car! She was able to recognize the signs, unbuckle herself, grab the steering wheel and apply the brakes in time to save them. But once again..no memory of anything and it has been concealed from us all. He has no drinking problem (he will drink on occasion). But it is my understanding that he should not be drinking at all with Tegretol (so I guess it is a problem). He has been an epileptic since early 20’s, doctors are not sure..they say possibly an auto accident he was in or maybe from birth, but they can find no indication from the standard testing that has been done. I have decided to call and tell everyone in our family about what happened….he is NOT happy with me right now but I hope that this increased attention will bring increased accountability. Do you guys think I have done the right thing?

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.......... offline Verified User (2 years, 11 months) Long Term User Shouts: 1 #
An Undisclosed Location | 2 years, 9 months ago (5 days, 20 hours after post)

Absolutely. You know you are & hopefully one day he will know too. I know hes not an addict but I think in this case, seeing the potential danger, family intervention is very appropriate. Your family is lucky to have you.

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Oster: Gettin' It. offline Verified User (2 years, 10 months) Long Term User Shouts: 1 #
Atlanta, GA, US | 2 years, 9 months ago (6 days, 1 hour after post)

The situation is tricky, Matt, but your brother is angry with you now because he knows there is truth to what you’re saying. The only way I know for your brother to live with serenity is to accept his condition and learn to live well with it.

I think you may find it easier if you also accept that he already has a good idea about what’s happening with him, and if you define your wishes clearly, he may find it easier to accept that he denies his condition at the possible detriment of others.

Other family members could be helpful by understanding that ‘protecting’ him from the truth feeds his denial, and disrespects him. Of hand, I would say that telling him of events which cause you concern is the right thing for you to do, but not to let that dominate your relationship. You may not be the one to get through to him, but we often have to be coaxed out of denial by hearing enough of other people’s perspective to come to our own conclusions. He may not remember everything, but he may be aware of gaps in his memory, and be able to conclude that there really was a danger to his family because he had a seizure while he was driving.

Yo might consider what help he would need if he were to come out of denial, let him know what help is available, let him know you’re there for him.

I don’t think you should apologize for telling the truth.

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Matt offline Verified User (3 years, 5 months) Long Term User Shouts: 2 #
US | 2 years, 9 months ago (1 week, 4 days after post)

He is going to the Doc tomorrow (again) so I am thinking that he is finally coming around here. Thanks for all the help!!

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Oster: Gettin' It. offline Verified User (2 years, 10 months) Long Term User Shouts: 1 #
Atlanta, GA, US | 2 years, 9 months ago (1 week, 4 days after post)

Great to hear!

Keep us posted.

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-Angel- offline Verified User (2 years, 9 months) Long Term User Shouts: 2 #
An Undisclosed Location | 2 years, 9 months ago (1 week, 5 days after post)

best of luck

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