June help: I just found out I may have epilepsy, I’ve had 12 seziures since June 12th anyone have any feedback? - Help.com

nikkimichaell
offline Verified (2 years, 4 months) Visit nikkimichaell's shoutbox
Troy, NY, US

I just found out I may have epilepsy, I’ve had 12 seziures since June 12th anyone have any feedback?


This open post was written 2 years, 4 months ago | V/U/S: 179, 21, 4 | Edit Post | Leave a reply | Report Post


Reciprocity (0) Reciprocation Failure -- The poster has NOT helped anyone else yet!

Since writing this post nikkimichaell may have helped people, but has not within the last 4 days. nikkimichaell is a verified member, has been around for 2 years, 4 months and has 1 posts and 11 replies to their name.

Post Tags (4)

Replies (21)

Where were you?

Click and drag to move the map around. FAQ: How we place people on this map »
You can also watch events on Help.com as they happen
Mouse over the map for 2 seconds to see an expanded, interactive view

kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (2 minutes after post)

What’s epilepsy?

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (3 minutes after post)

I am just really learning about it myself but it is a seziure disorder

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (4 minutes after post)

Oh I’m sorry to hear that… :(

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (5 minutes after post)

thanks

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (5 minutes after post)

Well, I hope you get better

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (6 minutes after post)

Thanks again It really sucks BC I can’t swim, ride a bike DRIVE or anything

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (6 minutes after post)

Man that sucks

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (7 minutes after post)

Not being able to drive is pretty bad…. :(

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (8 minutes after post)

yea really!!!! I am just learning and when they took away my permit it was horrible

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (9 minutes after post)

Dude, that’s horible

Quote this reply Report this reply to moderators
kiwi001 offline Verified User (2 years, 4 months) Long Term User Shouts: 4 #
Salt Lake City, UT, US | 2 years, 4 months ago (10 minutes after post)

Do you think you can get better and get your permit back?

Quote this reply Report this reply to moderators
cady offline Verified User (3 years, 4 months) Long Term User Shouts: 1 #
San Francisco, CA, US | 2 years, 4 months ago (10 minutes after post)

Have you asked your doctors about your prognosis? Have you talked with them about medications yet?

Or are you just looking for a sympathetic ear?

Seizures are manageable in a lot of people with the proper medications and treatment. I hope your case turns out as well.

Quote this reply Report this reply to moderators
Help me with: To you all:
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (13 minutes after post)

I probably can

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (17 minutes after post)

I am not just looking for a sympathetic ear….. I am curious as to anything anyone can tell me….. They have not actually given me a diagnosis yet…. they said they are pretty sure it is a form of epilepsy….. and I am on Keppra - an anti sezure med. just began it about 2 weeks ago and have only had one seizure since….. but I have two test comming up one at the dr’s office a 24 hour eeg and a study at an epilepsy unit of albany med Hospital

Quote this reply Report this reply to moderators
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (20 minutes after post)

I know that they are treatable but fist they have to figure out exactly what the problem is

Quote this reply Report this reply to moderators
cady offline Verified User (3 years, 4 months) Long Term User Shouts: 1 #
San Francisco, CA, US | 2 years, 4 months ago (20 minutes after post)

Ok gotcha. Sorry that I don’t have any personal experience that I can share with you. All I can say is be patient. And hope for the best. It’s possible that with time, your condition will be manageable and you can lead a “normal” life, as you did prior to your diagnosis.

I do wish you the best of luck though.

Quote this reply Report this reply to moderators
Help me with: To you all:
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (20 minutes after post)

Thanks a bunch

Quote this reply Report this reply to moderators
cady offline Verified User (3 years, 4 months) Long Term User Shouts: 1 #
San Francisco, CA, US | 2 years, 4 months ago (24 minutes after post)

You might find some of these sites helpful. It’s my opinion that when faced with a problem, go directly to those who suffer for support. Maybe you can find some answers here.

http://www.epilepsysupport.org.uk/
http://boards.webmd.com/topic.asp?top…
http://cms.clevelandclinic.org/neuros…

Or do a search for yourself and see if you can find other resources online. Good luck.

***I’m not trying to send you away from here! Please don’t misunderstand. Just thought you might find some answers somewhere else too. :)

Quote this reply Report this reply to moderators
Help me with: To you all:
nikkimichaell offline Verified User (2 years, 4 months) Long Term User Shouts: 0 #
Troy, NY, US | 2 years, 4 months ago (26 minutes after post)

Oh thanks a lot for your advice I will check them out.

Quote this reply Report this reply to moderators
Arnday the Imbroglio offline Verified User (2 years, 6 months) Long Term User Shouts: 6 #
An Unknown Location | 2 years, 4 months ago (3 hours, 48 minutes after post)

Epilepsys a nasty little bastard of a condition to have, considering your frequency of seizures im assuming its something of a bad case. Well firstly let me express how sorry I am to hear about that, although I dont know anyone who personally has it, ive heard how troublesome it can be.

Whilst I believe their are meds that will help control it I dont think it can be fully cured. Sorry babe, looks like youll have to lay off flashing japanese cartoons.

Quote this reply Report this reply to moderators
Help me with: Thats it!
This reply has been removed.

Invite Others to Help

A logged in and verified Help.com member has the ability to setup a Friends List and invite others to help with posts.