[Help] When I was a teen, my really young brother had a really bad problem.

Reply from cloudnine

cloudnine — Thu, 14 May 2009 19:21:07 +0100

yeah the thing is is i was getting weaned off myn to go onto other epileptic medication and even doing that caused alot more fits than i normally get! and it is worrying that she weaned him off them as i know for a fact as i have had it said to me at the hospital with epilepsy you should not come off medication unless they give the go ahead with it. as they control them. you can go with out seziures for years and then they start again. epilepsy doesnt get cured either well when little children have it they sometimes grow out of it but teenagers to adults it normally sticks with you. so its worrying he isnt on anything. why did she do it? how did she react when she found out? its hard as my parents when i say im not feeling well im feeling spaced out they say we all get that but they dont listen or understand what im going on about as the tablets and having epilepsy does that. so i know they care just different ways of showing it could that be the case with your mum?? the way she dealt with it i take it did she refuse to listen to it all?

Reply from Anonymous

Anonymous — Thu, 14 May 2009 17:09:01 +0100

I think it was dumb to wean him off! I am worried about it, and have been for a long time. What if he has another seizure and he doesn’t get meds on time? It’s totally irresponsible. You obviously have it much worse than he does. I’m very sorry about that! My mom just never seemed to care, not since I was little. He is much younger than I am, so he doesn’t ever remember her being normal or nice. It was horrible to witness. She was never there when I needed her. It was one more instance where she showed that we weren’t important enough.

Reply from carpe_noctem

carpe_noctem — Thu, 14 May 2009 03:42:49 +0100

my dad has epilepsy. he’s 48 and was diagnosed at 17. its nearly unnoticable, and the onley danger is forggeting meds. but he lives a full and fun and normal life, and we all do too. i onley worry when he’s alone on a trip or something, because he’s forgotten before. but he’s ok. im sorry about the mother situation, you’ve had more than your share of work. but it just means you are going to be an amazing, caring mother someday. you have high value in society, and i respect it.

Reply from Anonymous

Anonymous — Fri, 01 May 2009 18:09:41 +0100

i was the one you wrote on my post earlier i have epilepsy so thought i would comment. yeah what you said on myn your mum was probably wrong to wean him off them herself as its so important the doctors do that. its good he hasnt had any for a while but dont mean to scare you but doesnt meant to say it hasnt gone. i went for 18 years without a big seziure and then thats when they started. i terrified though cant go in the shower unless someones about have to cook things on the back hob just incase i have a fit its awful. by reading this post your mum might have been worried and panicking in her own way, or just trying to block out as my mum and people around me were pretty freaked. must be horrible to wittenss though. i know after it feels horrible anyway take care