Pink Freud's reply history at Help.com

[quote red1263]Heya Pink, I’m really glad about this doctor, he not only looks out for your health, but your overall well-being and future endeavors. This is a good doctor. I hope that you get taken care of![/quote]

Thanks!

Here’s some information about what they plan to do:

http://www.medcentral.org/Main/Celiac…

[quote Mitzy★]I really hope the treatment works for you so you can get well! *hug*[/quote]

Thanks!

[quote sansceriph]So you’re going to delay the road trip Minnesota? Aw, and I had everything packed for the party bus. You did invite all of us, right? Oh well, it’ll be better in the summer anyway.

Really, though, the treatment for pancreatitis possibly causing a bout of the same of it confuses me. That’s kind of like whiskey curing a hangover isn’t it?[/quote]

OK, so what he is supposed to do is treat the cause of pancreatitis and that won’t likely won’t be happening until this current attack subsides. Once this attack is gone they will treat the disorder which causes me to get pancreatitis to begin with. This disorder is known as sphincter of oddi dysfunction. As a result of this disorder I usually get pancreatitis 4-5 times a year, sometimes more. This month alone I have aready had 5 attacks. However, none of those attacks have been severe enough to be hospitalized because area hospitals have set some arbitrary rules as a result of their limited resources.

[quote VFX Protest]so… you have pancreatitus, and the treatment can cause pancreatitus?[/quote]

Yea. But more than likely, they won’t start the treatment until the latest attack of pancreatitis subsides.

[quote VFX Protest][quote Pink Freud][quote VFX Protest]Are there any side effects to the treatment?[/quote]

There’s a possibility I could get pancreatitis.[/quote]

But… Don’t you already have it?[/quote]

Yea, that’s one of the reasons they’re eager to provide me the treatment — no more bouts of pancreatitis.

[quote VFX Protest]Are there any side effects to the treatment?[/quote]

There’s a possibility I could get pancreatitis.

[quote kitty.hatake]I hope the treatment does work for you. You sound like you’re in really bad shape right now and need help. You can make it through this. I believe in you :) good luck.[/quote]

Thanks! :)

[quote The Sherlockian]Good for you! An ultimatum to those sops!

I hope the treatment does work![/quote]

The doctor who will be treating me said he has been treating another patient for 13 years and it works for her she just has to come in every 3 years to have it re-applied.

[quote The Sherlockian]I would modify his agreement by changing it to: “If it doesn’t work, I’ll refer you to the MN doctor and your friends can break my legs!” ;-)[/quote]

lol. He was the one who originally suggested this treatment approach but one of his fellow colleagues shot it down as being “too risky and the chances of it working slim to none” so I told doc I see for my gastroparesis that the doc I see for my SOD is a coward and so therefore I am going to MN for treatment. He said “I’ll treat you!”

[quote Mohit M]What is his treatment? Hope it doesn’t too much medication. That stuff is usually riddled with side effects which is why I prefer herbal treatments to allopathic. But allopathic is the only choice in case of emergencies. Having a seizure asleep must have been pretty hard to go through. I hope you have the time for some rest and relaxation. Please keep us posted on how it goes for you. Wish you a full and swift recovery (something I myself need right now :) ).[/quote]

His plan is to do what is called botox injections and a celiac plexus block. The botox injections will make it so my sphincter of oddi muscle will be unable to spasm. But you may be asking “what is the celiac plexus block?”.

Well a celiac plexus block is an injection of local anesthetic into or around the celiac plexus of nerves that surrounds the aorta, the main artery in the abdomen. Normally these nerves control basic nerve functions. In certain conditions, these nerves can carry pain information from the gut or abdominal organ tissues back to the spinal cord and brain.

[quote lnfunlife]Ohh…You are not well at all. I will pray for you. The treatment will work surely. I believe you will not loose hope. Still be stronger & believe in God. May God be with you. Move with plan. As the doctor knows you I hope it will be easier for the treatment.

Many many love & hugs… You will come round again :)[/quote]

Thanks! :)

[quote southern_comfort]This doctor sounds very promising and well educated, unlike the dip-s*** you had before. I wish you all the best, pink. You can’t heal yourself and I applaud you being willing to seek help from those that can.

Unlike some others here that can’t get past their own ego and narcissism.[/quote]

Thanks!

I pretty much told this doctor that the other doctor was too much of a coward to be of any help to me. The doctor I’m currently seeing laughed and said “sadly, you’re not the first one to say that.”

[quote BIG AL ONE]I hope, for your sake that this doctor can cut the mustard.
I also hope, that your situation is not a lifetime problem.
My mom had congenitive heart failure - a lifetime problem. Sometimes, I wonder who had it the hardest. Her of course, but it hurt me to see her go through heart surgery after heart surgery.
I hope for a happy ends to the means for you.[/quote]

Thanks. The doctor said that even if this works, I’ll have to come in something like every 3 years to have it re-done as the treatment requires the usage of botox and, as you probably already know, botox wears off after awhile and needs to be reapplied.

The botox is supposed to stop the spasming of the Sphincter of oddi muscle which, if not stopped will continue to cause me to get pancreatitis.

[quote Dalek Karan]You do not sound well.[/quote]

No, I’m not.

Thanks for noticing.