I’m still waiting for a diagnosis! Nothing is clear yet.
After the first lung biopsy histology (stationary at the hospital) I had to make a second one (ambulant at the same hospital), because they told me that they couldn’t find any significant cells yet. And recently they told me, even with the second one they couldn’t find any.
And this despite of the big space-consuming lesion in the lung (which is very good visible in the lung x-ray).
They said also that the histology of the surgically removed cells from the cerebellum don’t show any clear results.
Seems to be a mystery …
(But the oncologist told me, that cancer cells know multiple ways to disguise.)
Maybe I have to endure a third lung biopsy, this time made from outside, CT-guided through the thorax to check also the lymph nodes near the lung.
Until now the oncologist is clueless and he cancelled the first meeting which was scheduled for yesterday.
They made the first two biopsies across the airway deep down to the lung with needles and forceps to get cell samples.
Beside the side effects (some small local lung injuries for which I’ve to take antibiotics, and a heavy, but now decreasing cough which I’ve never had during my whole smoking life) I feel very well!
And now, this afternoon I’ll have my first appointment with the oncologist.
A short information for my friends about my current situation
(And, sorry, this is a general message; I’m not able yet to send individual messages to each of you.)
In the morning of Monday March 19 fits of dizziness started in a row. I wasn’t able to stand or walk without vomiting. My first idea was: influenza (because that days we had influenza high season here). And my wife and me had to ask for a domiciliary visit of our general practitioner, because I wasn’t able to visit him. But no fever, and normal blood pressure. So he called the emergency room (ER) of the next hospital and they come for me, transported me lying (!) to the ER.
There they made a genral check again and didn’t find anything — before they started a first computed tomography (CT) scan. The CT showed an incident in my cerebellum. (The cerebellum is responsible for the fine motor skills.)
But because they haven’t a neurological department, the ER transported me further to the neurology of the university hospital. And after some more clinical diagnostics (including MRI, X-Ray etc. — the whole programme) it was clear: I had what they call a “space-occupying lesion” in my cerebellum (less mealy-mouthed: a tumor); type of tumor and cause still unknown. But to make a brain surgery was urgent.
The surgery happened Friday 23, made by an excellent neurosurgeon and without any single harmful secondary effects to my brain or my locomotor system — just great!
Unfortunately the histological result showed that this tumor was a metastasis of a quite big primary tumor found in a part of my lungs, confirmed by an additional Positron Emission Tomography (PET) and a lung biopsy.
The fact is: It’s a metastasizing lung cancer — but still treatable.
(And yes, I’m a heavy smoker. But b.t.w. not all smokers get lung cancer and not all lung cancer patients are smokers.)
Thursday 29 my hospital stay ended.
Next week I will have a first meeting with the oncologists. The further treatment (probably with chemotherapy) will start after, and presumably in an ambulant manner.
You have to know that I’m in a very good mood, really! I’m not sad, not glum, and not quarreling with my fate at all! And I have no problem to talk about this disease. I take it as it comes, and I have also a wonderful support by my family and friends living here.
I guess I will not come back to help.com so often as before, but I will!
I thank all of you who enquired, and I wish you all the best, because: Things always seem to happen when you least expect them.
P.S. 1 The best joke is my avatar picture, no? Like anticipated somehow …
P.S. 2 You may show this message also to other people who ask after me; I’ve no secrets.
To be exact, Descartes was a nobody in neuroscience. But it was 17th century! And at that time no one was somebody in neuroscience. ;-)
But not only his sentence “Cogito Ergo Sum” (I think, therefore I am) will stand the test of all time.
His view of the pineal gland was a mystical one, congenial to his time and the lack of scientific knowledge.
But the pineal gland and its true purpose is still rather unknown. Did you know that it has been observed that some yogis who have practiced deep, intensive meditation developed larger than average pineal glands?
I don’t think that the secretion of melatonin into the blood by the pineal gland would be its only purpose. The function of this little piece of brain seems to be much more complex … More research is needed. Do it! ;-)